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Patient Navigator/Care Assistant

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Job Summary:  Neurofibromatosis (NF) Midwest is looking to fill a NEW position which we are calling a “Patient Navigator/Care Assistant”. Being a new position, a large part of the duties of the NF Navigator initially will be to further define this position and to develop resources. This position promises to be fun, challenging and rewarding. The NF community in the Midwest needs a caring, dedicated, patient and determined navigator to help patients and families at many points along the health care and social continuum.

The NF Navigator is responsible for providing up to date and accurate information on the many aspects of neurofibromatosis; helping people to cope with neurofibromatosis; and providing guidance to the NF community as a whole and especially to individuals.

The Navigator will locate and direct people in the NF community to resources on health insurance, social security disability benefits, job accommodation, financial assistance, transportation, support, and much more.

This is a currently a part-time position of approximately 15 to 20 hours a week.

Job Responsibilities: (Essential job functions listed)

  • Participate in telephone intake, including screening of incoming client calls, provide information about neurofibromatosis, gather essential information about potential clients, and record data in NF Midwest’s database.
  • Provide education/information about neurofibromatosis and related topics, both to assigned clients and to others in the community who request it.
  • Communicate and follow-up regularly with clients and/or their families and significant others to discuss client's needs.
  • Record all communications in NF Midwest’s database
  • Provide crisis intervention to clients, as needed.
  • Refer/link clients to other NF Midwest programs.
  • Refer/link clients to appropriate external resources.
  • Outreach to potential referral sources in the community including, medical, other social services providers, community organizations, etc.
  • Work with the Executive Director on programs
  • Act as a liaison to NF clinics in the Midwest


Minimum Qualifications:

Education: Bachelor’s Degree in Social Work or similar; or a medical background

Experience: Preferred two years' experience preferred in social work or similar


  • Good knowledge of SSI/SSDI and the Affordable Healthcare for America Act
  • Knowledge of neurofibromatosis a plus, but not required
  • Outstanding communication skills, both written and verbal
  • Proficient in social media and email
  • Proficient at internet searching/researching
  • Knowledge/skills to work successfully with persons with disabilities and chronic illness
  • Self-starter, high level of initiative, proven proactive thinker.
  • Problem solver
  • Circumstances may involve providing services in the community and thus, would require a valid drivers' license, an automobile and appropriate insurance coverage.
  • Commitment to helping people.
  • Kind, understanding, patient, firm and assertive
  • Detail oriented